Update- June 2012.
Im now 29 3/4 years old and have had my amazing double lung transplant. I am 6 months post transplant now and can’t believe how lucky I am to be given this wonderful gift of live. This blog now follows me making the most of every single extra day xx
For those of you who don’t know me, I am 28 years old and live in Jersey with my husband Phil and our dog Disney.
I have a very rare genetic illness called Ehlers Danlos Syndrome which in my case basically means my body does not produce a certain type of collagen needed to keep skin, tissues and joints healthy. For me the main problems are with my lungs and I have ended up with end-stage COPD and I am desperately waiting for a double lung transplant, i joined the waiting list in June 2010. My last lung function was measured at 12% so I don’t have too much time to waste.
I have given you the link to this blog so that you will be able to follow my progress on the lung transplant waiting list. If and when I am lucky enough to be offered a new pair, then all info and updates will be available on here as it will be extremely difficult to update many people individually.
Let’s hope I have some positive news to post on here before too long!!
Love Kerry xx
Our Baby Disney!