Im a bit fed up I’m afraid! Not going to moan too much but it’s not been a great week breathing wise, haven’t actually been ill but breathing has just been very hard work and so I get incredibly tired. Thankfully I have been sleeping well so that’s going to help me get on top of it hopefully. Feeling a bit better today 🙂
With breathing being difficult, I have been struggling to keep the eating up and have therefore lost weight since coming home. I got my new scales yesterday and was slightly depressed by them. I’m 37.1kg today so not great. The thing is not to dwell but just keep eating- this is exactly what happens with lung disease, it’s a constant battle to keep the weight on because of all the energy you use breathing. Im really pleased to be at home but i do think it is harder work and making me a bit more tired.
I have come across a brilliant story ‘the spoons theory’ which sums things up pretty well I think! Follow this link and have a read:-
I have seen a specialist respiratory nurse today who will visit and monitor me at home which is very helpful.
So that really brings another week to a close, will be spending this weekend resting and eating…. Oh and listening out for that phone call!! Xx