I’m having a fairly good week, been feeling ok apart from a few aches and pains and the odd wheezy night. Had a couple of nights lacking sleep but not a bad week in all.
It’s been a busy week trying to get jobs done and plans made for my uk trip. I had a good conversation with the transplant team at Harefield, obviously we don’t know anything more about a future operation but they are supportive of my deciding to stay in the uk for a bit from the beginning of June. There is still a lot to work out but am getting things in order so I’m ready and trying to think of everything that needs to be arranged! It’s a big decision as to how I get to the uk, no options are ideal but I think we have decided on the overnight boat, I don’t really have any experience of this one but I’m told it’s the best if you aren’t a good traveller.
The most exciting part of this week has been my lovely kind friend Mim sorting my hair out for me. It had grown so long and thin and shapeless, I hated it. She has given me a lovely new style which will be much quicker and easier to manage and as Phil kindly put it- I ” look like a normal person again”. Such a one for compliments, my husband!! I am going to impress you all by adding a photo of it to this post- a little treat for those of you who read to the end! 🙂
they say ‘a change is as good as a rest’ and that’s exactly how I feel this week. I have been adamant since I got ill that I don’t want photos taken of me, but I have suddenly realised I hardly have any for the last two years. So these are the first ‘poorly’ photos to be publicised, it sounds silly but it’s very weird to see yourself so differently to how you think you still look.
I don’t think I have much more to report this week, still munching through the Easter eggs, don’t they taste so much better than normal chocolate? Weight is coming on well 37.7kg now. I’m aiming to be 38. Something for my appointment on 3rd June so fingers crossed. The heartburn tablets seem to be doing their job (when I remember to take them enough time before the meal!) so that’s good news too.
Also just want to say, thank you to everyone who leaves me messages and emails, it’s always so lovely to hear from people and I’m very touched by all your kindness. I do reply, it just takes me a while I’m afraid. I can’t believe how many people actually do read my blog, I need to think of how to make it more interesting….. Apart from getting the obvious transplant that is!
Lots of love