Just a quick extra post as I missed something out from my last one, I cant believe I forgot to mention it! My brother Ed has done something very special for me, check this out:
Very clever way of getting another tattoo past Mum Ed!! 🙂 Only joking- I am very touched by the gesture, thank you xxx
Also, i went to the local hospital yesterday to see the respiratory care team there as I have been struggling the last few weeks. They wanted to check my blood gases and carbon dioxide levels mainly. Finally after 3 different people and 7 attempts my arteries finally gave in and let us have some blood! My CO2 levels are raised slightly but nothing requiring any action as such. I am going to try and come off the oxygen for little times during the day as my oxygen levels are really quite good.
The other good news is that my spirometry figures haven’t changed since Nov. I thought with how I am struggling with the breathlessness that my lung function might have deteriorated more, but was ‘pleased’ to see we are still at an FEV1 of 12%!
Finally my physio has got me into a class at the hospital starting on tuesday, 2 hours twice a week in the hospital gym. This will be excellent for me exercise wise but also motivationally I think, although can imagine it is going to be pretty difficult to start with. We will just take it slowly and see what I can manage. Any improvement is worth it.
The respiratory care team here is so good- they have really gone out of their way this week to help me and I am very grateful 🙂