Just a quick extra post as I missed something out from my last one, I cant believe I forgot to mention it! My brother Ed has done something very special for me, check this out:
Very clever way of getting another tattoo past Mum Ed!! 🙂 Only joking- I am very touched by the gesture, thank you xxx
Also, i went to the local hospital yesterday to see the respiratory care team there as I have been struggling the last few weeks. They wanted to check my blood gases and carbon dioxide levels mainly. Finally after 3 different people and 7 attempts my arteries finally gave in and let us have some blood! My CO2 levels are raised slightly but nothing requiring any action as such. I am going to try and come off the oxygen for little times during the day as my oxygen levels are really quite good.
The other good news is that my spirometry figures haven’t changed since Nov. I thought with how I am struggling with the breathlessness that my lung function might have deteriorated more, but was ‘pleased’ to see we are still at an FEV1 of 12%!
Finally my physio has got me into a class at the hospital starting on tuesday, 2 hours twice a week in the hospital gym. This will be excellent for me exercise wise but also motivationally I think, although can imagine it is going to be pretty difficult to start with. We will just take it slowly and see what I can manage. Any improvement is worth it.
The respiratory care team here is so good- they have really gone out of their way this week to help me and I am very grateful 🙂
xxx
British Lung Foundation
Don’t take your organs to heaven with you, God knows we need them here!
Live Life Then Give Life
Transplant Tales 
Thank you, Kerry, for keeping us so up to date. Some of the technical language is difficult to understand – but I sympathise as I approach dialysis. Every time I see a specialist a hugely complicated computer screen comes up ……….. little of which I understand.
Kind wishes.
John
Dear Kerry,
You have done very well to keep your oxygen levels, lung function and weight gain stable despite all your trials. The physio is bound to make you stronger, which can only benefit you in the long run. I’m sure your experience will inspire others in turn.
Edgar’s tattoo is amazing – he must have suffered a bit for that, and obviously felt it was appropriate for that reason (apart from his appreciation of the fashion aspect!!)
I’m off to see the culmination of Tom’s play project tonight, which I’m sure will be very entertaining.
Hang on in there!
Love Jackie x
Hi Kerry
How brave you are my little chicken……I really hope and pray that the “call” comes soon for you. It is totally understandable that you’ve been feeling low, I’ve never heard you complain in all the time you have been ill, which is pretty amazing and says so much about how much strenght you have inside that little boby of yours (or fatter body…I should say now!!). You have done brilliantly with your weight and by the sounds of things could qualify as a doctor!! Keep your chin up pet and stay focused on the task ahead. Like I always say your a little trooper, but you have to have a day off now and then. Love you loads. Mim xxxxxxxxxxxxxxxxxxxxxxxxx
P.s – The tattoo is beautiful 🙂