Hello, I have finally got round to updating my blog…. There’s nothing like a list of thank you letters to get you doing other jobs! ☺
So yesterday was my 29th birthday and I had such a lovely day. I had spent all week feeling really grumpy and disappointed that I still have these useless lungs, (we had all secretly set my birthday as a deadline that things would be different by). But I really had a great day, I was thoroughly spoilt- I have never seen so many presents and cards, everyone is so kind and thoughtful- I am quite overwhelmed. The biggest and best thing of all though was my 2 surprise visitors….my Dad and DISNEY!! There had obviously been a lot of sneaking around and planning going on, to which I was completely oblivious. Thank you Mum and Dad- what a great present xx Mum kindly took a picture of my reunion with my baby (I was so excited I actually let the camera out so early in the morning!):
So lovely to see her, I had been missing her so much. It was Aunty Jane’s idea and I owe her a massive thank you for allowing Dis to come and stay- she already has enough Dingle / Maletroit intruders!
So I had the morning until 2pm with Mum, Dad and Phil, then my parents left. About 4pm, Jane and Jim came home and we then had cake and supper all together with my cousins James & Jacob too. Im not sure if I have mentioned on the blog before that for the last 2 months the only meal that doesn’t give me bad reflux is Jacket potatoes. I have one EVERY night! So last night we all had jacket potatoes in my honour… not sure the men were too impressed but it was a sweet thing to do.
I went to bed exhausted but very happy last night, yesterday was a lovely timely reminder that I am a very lucky girl and have a lot to be thankful for ☺
Here are some more pics of my birthday:
Now I need to fill in the gap from 15th August until today. If I had written an update last week, I would have moaned. But you are in luck today because I am still on a birthday high! Really the last 2 weeks have been pretty hard work, I haven’t been feeling great and my breathing hasn’t been easy.
I only went back to Physio this Thursday so that was a whole 2 weeks off which isn’t great. Especially when I only missed the Tuesday one because I had a panic attack and wouldn’t go in the car… that wasn’t a great day. Most of you will know how much I suffered with panic attacks last year and I worked really hard to overcome them. I still have to work at it most days but I haven’t actually let myself panic for about 6 months now so I am really disappointed that I took a step backwards. The good news is I managed fine on Thursday so hopefully I haven’t completely regressed.
I have been finding the Oromorph medication very useful, it really does settle breathlessness and I’m sure it helps with my chest pain too. I am rationing myself on it as I don’t want to get too used to it but its great to have something to help a bit more when I am struggling.
I am going to label August 2011 as “Spider month”. Oh my goodness there have been some big ones. They seem particularly attracted to my slippers and this is not fun! There have been some very comical moments and fair play to Mum- she has been very brave. 3 nights in a row I made her move one from by my bed. They are those really horrid big black ones with long stretchy legs and they move so fast. Eugh it makes me shiver thinking about them!!
The last few weeks haven’t been particularly busy as I have just been recovering from the last illness but highlights include seeing my friend Leanne and her husband Donald for an evening, my Nana and Pompa came to visit too which was so lovely seeing them and also more Aunt, Uncle and cousins- the Dingles ☺ Great to see all of you thank you xx
I want to also say a HUGE thank you to my lovely mate Mim, who took a long day out of her very busy life to fly over visit and cheer me up and also give me a fab hair cut. She knows what a star she is because I have told her lots of times, but a million thank yous Mim- you are soooo kind xx
Here are some hair cut pics:
And my new glasses:
Overall this week, I am feeling much better. I started sleeping again which was a big turning point and I have lost a little of the extra weight but am still 40.8kg so pretty happy with that.
I also wanted to mention that both Kim and Edgar have started new jobs last week- good luck guys, hope they are going really well! And Tom just keeps going on holiday- lucky boy! Xx
Finally I have some plans for next week, unfortunately they are not exciting. I have only just been told that I have to go to the Brompton hospital in London (Harefield’s sister hospital) for a review. The respiratory care team here felt that I could do with a proper review given I have been struggling for a while now. They are taking me as an in-patient for 5 days (not sure if I am happy with that!). Hopefully they will come up with something helpful and I know I will be trialling the non-invasive ventilator. They provide your body with a really good rest, which at some point in the foreseeable future will probably become a necessity. They are not easy machines to use and tolerate and I have struggled when I have tried them before. Hopefully by the end of the 5 days I will be able to use them.
Wow what an essay of a blog… well done if you have reached the end!! So now I am going to enjoy the weekend with Phil and Disney and I will be back in touch after my Brompton stay and let you know how it all went!
Hope you all enjoy the bank holiday weekend.
Love Kerry xxx