Hi everyone! This is a rather exciting blog as it marks a huge milestone for me…. I’m moving back to Jersey this week. After what feels like a very long year, I can’t believe I’m about to get home and put it all behind me. I’m actually starting my new life that I had given up hope of having after all that time waiting.
This is the perfect time to thank everybody so much for all your support and prayers, I know I’ve said this before but I am still overwhelmed by everybody’s kindness. My family have been amazing, Tom Kim and Edgar are just the best siblings anyone could hope for and my parents have been wonderful, particularly my Mum looking after me and spending so much time with me. Thank you to Phils parents and family too for being so supportive and caring and to all my many friends, wish i could name you all, you are all lovely. I could not have got through the last few years without you all. Aunty Jane and Jim and my cousins deserve a special mention for opening up their home to me and looking after me so well, your generosity has been so appreciated and you have literally saved my life by enabling me to be in the uk. I will be sad to leave you but don’t worry I’ll be back all the time (especially for the pool!).
Finally, Phil- words cannot describe what Phil has been through and I think it is impossible to say how much I appreciate everything he has done for me and how much I love and admire him. He is an absolute star and I cannot wait to start this next chapter of our lives together 🙂
So, enough soppy stuff…. I’ll give you a ‘quick’ round up of what I’ve been up to since my last blog. I think this is a good point to stop the regular updates of everything I’m doing, I’m sure you’re all getting a bit bored of listening to my daily routines! I will continue to blog though whenever anything interesting occurs…
I’ve been particularly busy the last few weeks, trying to visit uk family and friends before i left. Really enjoyed seeing you all, and those I haven’t managed to see, I’m really sorry and I will do soon. I will be backwards and forwards to the uk all the time so plenty of chances to catch up with you all.
Phil and I have had one weekend together over here and the weather was miserable so we actually went bowling. I can’t remember the last time I went bowling…. Phil and I worked out we had never been together so that’s over 5 years ago! I managed really well, I had to be careful to use the light balls and not let it pull on my chest but I didn’t embarrass myself totally although unsurprisingly Phil won!
I gave a talk to the board of the local hospital (St peters) about my patient experience. I really surprised myself and wasn’t nervous at all. I seem to have grown in confidence a lot since my transplant. I had absolutely zero confidence when i was ill but now i kind of feel that after everything I’ve been through I can be proud to be myself and not worry about what others think of me too much. I’ll try not to get cocky though… I’m sure a few people will tell me if I do! 🙂 anyway I enjoyed giving the talk and overall I had nothing but praise for the fantastic care I received there, it was nice to be able to give the names of certain members of staff who had really stood out as wonderful.
Aunty Sue had suggested I see a special foot doctor to help me sort out my leg and back pains etc. She very kindly drove me all the way up to Port Talbot and we had a lovely few days there and in Cardiff, where my cousin Alex is at Uni, and we watched his rugby match at the Millenium Stadium. I surprised myself and really enjoyed it! I’ve promised Phil to give an Everton game another go now! Thank you Sue for being so kind and for your lovely company 🙂
Apart from that I have been so busy sorting and packing all my belongings up, I have accumulated so much stuff over the last year! Dad has very kindly come with his big range rover to bring me and all my gear back to Jersey.
I’ve just had a lovely last couple of weekends with Jane and Jim and my cousins James, Jacob and Clare and Sean. Photos to go up when I get home! Now added below…
I’m in clinic in Harefield tomorrow and all being well I shouldn’t be back until 11th June. Fingers crossed it all works out as I have a very busy and exciting few weeks coming up…. This weekend coming is Kims hen do, next weekend is a special ball to raise awareness of Ecmo treatment. I will write more about this next time but if anyone fancies going please get in touch, the details are on my fundraising page. Then finally in less than 3 weeks time, my little sister is getting married! I can’t believe it’s so soon and I absolutely can’t wait.
Happy 30th birthday to Phil’s sister Becky for tomorrow. I was really sorry to miss the party this weekend but I’m sure we will find time to make up for it when I’m back…. Maybe a girls night out is in order! Have a lovely day Becky 🙂
Finally I would just like to mention my Internet friend Rachel who got her lung transplant this week. She is the first person I know to have one since me and I’m so happy for her. She is a lovely strong person and I’m sure she will do very well. Please remember her in your prayers in these early tough weeks. Please spare a thought for her donor and family too, these events are always bittersweet. I also have some more friends patiently waiting for their chance, hoping it will come very soon. I remember that wait all too well and trust me, everyday is so hard. I hope they will get the call they deserve very soon. I would particularly like to mention my friend Bill who just had his 12th false call last night…. So hard. Also a lovely girl called Kerry is feeling really ill at the moment and every breath is a struggle.
I read something interesting the other night…. To find out how it feels to have lung disease, get a straw, seal your mouth around it, pinch & hold your nose and try to take deep breaths in and out through the straw and that is supposed to give you a tiny taste of what these people struggle with. Not to mention all the other pain and symptoms that accompany it and the sleep deprivation…. It really is tough. Please pray for everyone out there waiting for their second chance…. They all really deserve it.
There is just one final person I want to mention in this rather heavy post! The most important person in all of this…. My donor. I feel really rude being so impersonal about someone who has so selflessly saved my life, but unfortunately I may never know more about them. All I know is that they are wonderful and I owe everything to them. I just hope their family are coping and that with my life, I will make them proud.
Love Kerry xxx