Yesterday my lung function tests were still down and I now have a sore throat and didn’t feel great yesterday. I slept for hours so hopefully that will help and I am feeling a bit better today.
Just seen the Doctors, after a few days of uncertainty, they have decided I have pneumonia and rejection although biopsy results were non specific, ie; (typically for me) we don’t really know what the problem is.
The treatment plan for now is to double my anti rejection drugs and 6 weeks of high dose steroids. I need to be carefully monitored for the time being, keeping a very close watch on lung function. Hopefully these drugs will do the trick and prevent any damage to my lungs.
Im really disappointed as I was doing so well and I’m a bit worried about the long term effects of this. Plus I find it scary how I can have caught something as bad as pneumonia in my precious new lungs without knowing it. How long have I had it?
Anyway, waiting for final confirmation but the good news is I can leave hospital and get home to Janes, hopefully today 🙂 I can’t wait. I will be followed up in clinic next week and then can make some decisions as to when I come back to Jersey xxx