Hello, I am updating this from Walton 🙂
I was discharged from Harefield yesterday and will be spending Christmas here with Phil and the Piersons and Devereux family 🙂
The final verdict from Harefield was RSV ( a respiratory virus). They gave my lungs a good clean out during the bronch and I had a week of anti-viral nebs which are really strong & horrid but thankfully did their job and on Saturday I had my second negative swab result which is what was required to get me home for Christmas. Im also on some strong antibiotics but the Doctors said that the lungs are not in bad shape and the virus was more in my tubes than the actual lungs so that was reassuring. The best thing is there were absolutely no signs of rejection so I managed not to have any increased anti-rejection doses or steroids so Im hopefully not going to blow up like a balloon again (well, apart from Christmas food!!).
I am hoping to get back to Jersey on 27th and I will be followed up in Harefield at the end of the first week in January. Phil already has the all day boat booked back that day with a cabin so I can join him and not be surrounded by germs etc which is very important at the moment- I need to be really careful until I am fully recovered.
Its so nice to be out of hospital- it has been a long week and I am feeling pretty tired and weak- I need to build myself back up again. I have lost over half a stone in weight, which to be honest I wanted to anyway- not sure whether it was from illness or hospital food!!
My toe has healed really well, they took the stitches out for me on Saturday and so far so good 🙂
The doctors and whole team at Harefield have been so brilliant and really pulled out all the stops to get me well and home for Christmas so a massive thank you to them.
I have got some things to update you all on but I will wait until I am back home for that so all I really want to say is thank you everyone for all your support and well wishes and I hope everyone had a fab christmas 🙂
Lastly, please spare a thought for all those families this Christmas who have lost loved ones and those who are really poorly this Christmas. I also have a few friends desperately waiting for their new lungs and I would so love to see that happen for them very soon.
Lots of love xxx